Preparing Heart and Mind
What is Preparing Heart and Mind™?
Our focus is on supporting parents during an uncertain time - when there are concerns about a baby’s health before and after birth.
We have developed the Preparing Heart and Mind™ care program as a new way to provide what parents need along the journey of becoming parents to their new baby. The care program includes a mobile app designed for a pregnant person and their caregiving partner (for example, a spouse, partner, or grandparent). This app is based on what we have learned from parents, like you, and healthcare providers who are dealing with fetal and infant health concerns.
What is the purpose of this study?
The purpose of this study is to test the Preparing Heart and Mind™ care program, and find out how it could be used to make a family’s experience better.
What will study participants do?
Study participants will complete surveys throughout the pregnancy and after the birth of their baby. Some may have video sessions or phone calls with a nurse, who will help with the app, answer questions, and talk about important experiences and issues.
Is there any compensation?
Yes! In recognition of participants’ time and effort, each will receive a gift card for each study activity completed.
This research study is coordinated by the University of Minnesota. Study participation involves the use of smartphones, tablets or computers. No appointments on campus or in clinics are required for this study.
The Preparing Heart and Mind™ study has been generously sponsored by:
University of Minnesota Department of Pediatrics-Masonic Cross-Departmental Grants for Children’s Health Research
A pregnant person who has been told that your baby may be born with a heart condition?
At least 20 weeks along in your pregnancy?
At least 18 years old?
Able to access a smartphone, tablet or computer?
If so, you may be able to take part in the Preparing Heart and Mind™ study.
Click the button below to send us your contact information. A nurse will be in touch.
In addition to our current study, here are a few things we are working on!
Connecting with parents who are willing to learn more about our projects and give us feedback on our work. We believe that it is important for parents of infants with CHD to have a voice in research, and we are committed to inclusive work that reflects ALL families who are impacted by CHD. If you are a parent or caregiver of a child with CHD and may be interested in participating in a focus group with other parents, we would love to connect with you! If you’re interested in learning more, please click here.
Translating the Preparing Heart and Mind™ care program to languages other than English.
Finalizing a new app for parents that supports human milk feeding and breastfeeding for infants with heart disease. Click here to read more about this new Preparing Heart and Mind™: Human Milk Feeding™ care program.
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