Center for Children with Special Health Care Needs
Today as many as 20 percent of U.S. children and youth have special health care needs who require care in home, school, primary care and specialty care settings. These children are challenged by chronic physical, emotional, developmental and behavioral conditions such as asthma, autism, cancer, diabetes, Down Syndrome, hearing loss and spina bifida. The Center for Children with Special Health Care Needs is committed to advancing the science, care and outcomes for these children and their families.
The Center was founded in 1993 by a nursing training grant from the Maternal and Child Health Bureau, Health Resources and Services Administration, Department of Health and Human Services.
Sample areas of research and scholarship are:
- Chronic illness, including asthma and diabetes
- Care coordination and management of complex chronic conditions
- Cross-cultural health and culturally competent care
- Family health and caregiving
- Pediatric pain and palliative care
- Public policy development and advocacy
- Resilience and stress management
- Symptom management for children with cancer
- Transition to adult health care