Be The Change
Module 9: Be The Change
Awarded Contact hours: ANCC 1.0; MNBON: 1.2 Purpose and Description
The purpose of this presentation is to share one family’s experience of caring for a child with a complex rare disease. Theresa Zimanske’s story of her family’s experience is tailored to health care providers who wish to learn how to partner with families in order to enhance the patient, family, and provider experience of health care. Be The Change is an organization founded by Theresa Zimanske “to give a voice to the patient and family perspective as a way to enhance the human experience and improve the quality of health care” –http://bethechangemn.com Objectives of the Module:
On completion of this module, the learner will be able to: - Describe the importance of assessing the family context when planning and providing care for children with acute or chronic health conditions.
- Discuss the significance of family strengths and resilience in the context of caring for children with chronic/terminal conditions.
- Give examples of system-level policies that may support positive provider-family relationships in the context of acute or chronic illness.
Author Bio-sketch and Credentials:
Theresa Zimanske
Theresa Zimanske, founder of Be The Change, LLC, shares the patient and family perspective in healthcare and her family’s real life experiences to strengthen relationships and create partnerships with health care providers. Zimanske eloquently shares her story of a family’s journey with a son who died from a complicated rare disease.
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